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Abc’s “Unveiling The Family Heartbeat” Campaign Features Stories of People Living with Familial Hypercholesterolemia

by Amy

WASHINGTON, Sept. 24, 2024 /PRNewswire/ — The Association of Black Cardiologists (ABC) has launched a new campaign titled “Family Heartbeats Unmasked – Sharing Stories. Empowering Communities.

Saving Generations.” This initiative aims to raise awareness about Familial Hypercholesterolemia (FH), a genetic condition that greatly increases the risk of early heart disease and is frequently underdiagnosed, particularly among Black Americans and other minority groups.

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“We are thrilled to share these impactful stories and vital resources with our community,” stated Dr. Keith C. Ferdinand, Chief Science Officer of ABC. “Our mission is to educate and promote equitable care for those affected by FH, especially in underserved populations.”

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The campaign features compelling testimonials from individuals living with FH. One ABC Patient Ambassador shared, “I wish I had known that it was familial at that time. That would really have helped me to understand a treatment plan and how it may impact my children as well.” These narratives highlight the importance of understanding family health history and the transformative effect of early detection for both current and future generations.

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Family Heartbeats Unmasked” coincides with FH Awareness Day and September’s National Cholesterol Education Month, emphasizing the critical need for early diagnosis and treatment of FH, even in childhood.

Globally, FH affects about 1 in 250 people. Children with an affected parent have a 50% chance of inheriting the condition, yet only around 30% of those born with FH are diagnosed early. Alarmingly, up to 90% of individuals with FH remain undiagnosed, with Black Americans facing significant delays in both identification and care.

Through powerful patient stories, physician-led public service announcements (PSAs), and educational materials, this initiative seeks to bridge gaps in care and ensure that every individual receives necessary treatment, regardless of race, gender, socioeconomic status, geography, or ability.

“It’s crucial to identify FH in children since early detection through pediatric screening can be life-saving,” Dr. Ferdinand emphasized. “By raising awareness about FH and its impact on our communities, we aim to empower families with the tools they need to safeguard their heart health from an early age.”

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